Alzheimer’s & Dementia Additional Resources

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Dementia & Alzheimer’s Disease: Additional Resources

Organizations and Government Agencies

The Alzheimer’s Association

1-800-272-3900 (toll-free, 24/7) 

1-866-403-3073 (TTY/toll-free)

info@alz.org 

Alzheimer’s Foundation of America

1-866-232-8484 

info@alzfdn.org 

National Institute on Aging Alzheimer’s and Related Dementias Education and Referral (ADEAR) Center 

Phone:1-800-438-4380

Email: adear@nia.nih.gov 

National Institute on Aging/Alzheimer’s Caregiving 

Phone: 1-800-222-2225

ARCH National Respite Locator Service 

Well Spouse Association

1-800-838-0879 

info@wellspouse.org 

Eldercare Locator (offered by the Administration for Community Living)

1-800-677-1116 

Administration for Community Living

330 C. St. SW

Washington, DC 20201

202-401-4634

Find a list of regional offices on this page of the ACL website

Clinical Trials

U.S. Pointer 

Sponsored by the Alzheimer’s Association, U.S. Pointer is part of a worldwide consortium studying the effects of lifestyle interventions in supporting brain health and preventing cognitive decline. The program is open to people who:

  • Are between the ages of 60 and 79 
  • Do not exercise regularly
  • Have other risk factors such as a family history of memory problems, high cholesterol or high blood sugar, or mild hypertension. 
  • Live in proximity to one of six study locations (Winston-Salem, North Carolina, Sacramento, California, Chicago, Illinois; Houston, Texas; Providence, Rhode Island).

For more information:

EmailPOINTERinfo@alz.org

800-272-3900

Alzheimer’s Association TrialMatch

As of April 1, 2022, there are over 900 clinical trials in the U.S. that are currently recruiting participants. The trials are open to patients and caregivers and are studying a wide range of conditions, including mild cognitive impairment and specific forms of dementia such as dementia with Parkinson’s disease. To learn more about trials that may be suitable for you, visit the TrialMatch website or email TrialMatch@alz.org.

Alzheimer’s Disease Research Centers

The National Institute on Aging sponsors 33 Alzheimer’s Disease Research Centers across the U.S. These centers are working to translate ongoing research into improved diagnosis and care for people with Alzheimer’s disease and other dementias. The centers offer the public:

  • Help with getting appropriate diagnosis and medical management 
  • Information about Alzheimer’s and related dementias, including resources and services in your area
  • Opportunities to participate in clinical trials and related research
  • Support groups and other programs for patients and their families

To find a research center in your state, use this ADRC locator on the National Institute of Aging website

Alzheimer’s Experts and Researchers 

The following professionals are well known for their work in Alzheimer’s disease and dementia. This is by no means an exhaustive list of experts in the field, but we hope it may guide you in your search for a professional in your area.

Giulio Taglialatela, Ph.D. – University of Texas Medical Branch, Galveston, Texas

Dr. Taglialatela studies the molecular mechanisms of neurodegeneration and cognitive decline in Alzheimer’s disease and related disorders and is the Director of the Mitchell Center for Neurodegenerative Diseases at UTMB

Sara Banks, Ph.D. – U.C. San Diego Health

Dr. Banks is a board-certified neuropsychologist who treats patients with neurodegenerative conditions such as Alzheimer’s disease, frontotemporal dementia, primary progressive aphasia and mild cognitive impairment. She is currently the director of neuropsychology at the multidisciplinary Memory Disorders Clinic at UCSD.

Mark Bondi, Ph.D., U.C. San Diego

Dr. Bondi is a professor of psychology at UCSD and the director of the Neuropsychological Assessment Unit at the San Diego Veterans Affairs Healthcare System. He is board certified in neuropsychology and has authored over 150 research papers on Alzheimer’s disease and dementia and is the co-author of the 2013 book Mild Cognitive Impairment and Dementia: Definitions, Diagnosis and Treatment.

Rudolph Castellani, M.D. – West Virginia School of Medicine

Dr. Castellani is a Professor and  the Vice-Chair of Pathology Research & Section Chief of Neuropathology at West Virginia School of Medicine in Morgantown, West Virginia. He has co-authored numerous articles on chronic traumatic encephalopathy, or CTE, and the pathology and pathogenesis of Alzheimer’s disease.

Esther Seunghee Oh, M.D., Ph.D. – Johns Hopkins Medicine

Dr. Oh is an Associate Professor of Medicine, Psychiatry and Behavioral Sciences and Pathology at the Johns Hopkins University School of Medicine and the Associate Director of the 

Johns Hopkins Memory and Alzheimer’s Treatment Center. She has extensive experience in evaluating and managing memory disorders in older adults with multiple chronic conditions. 

Victor W. Henderson, M.D. M.S. – Stanford Medicine

Dr. Henderson is the Director of the Stanford Alzheimer’s Disease Research Center and a Professor of Epidemiology & Population Health and of Neurology & Neurological Sciences at Stanford Medicine. He is a renowned researcher whose focus is on mild cognitive impairment and neurodegenerative dementia and interventions to help prevent and treat these conditions.